Registry links

  • American Immunization Registry Association
  • The website provides abundant research and a forum where interested organizations and individuals share knowledge that promotes registry activities
  • CDC Immunization Information Systems Webpage
  • General information on immunization registries. Detailed information on topics such as Privacy, Confidentiality, Security, Legislation, Technical Development and Guidance, Funding, and Registry Participation.
  • Survey of State Immunization Registry Legislation
  • This document contains a table summarizing the results from a survey of state immunization registry-related legislation conducted by the Centers for Disease Control and Prevention's National Immunization Program (CDC/NIP). It is regularly updated by CDC.

ECBT Immunization Registry Resources:

 


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PROW - Programmatic Registry Operations Workgroup


Much of the developmental focus in creating registry systems has been on identifying and achieving minimum technical capabilities, such as ensuring data security and confidentiality, timely data access, and standardized data exchange.  In 2001, to ensure that immunization registries can support required core immunization program activity areas, the CDC, the American Immunization Registry Association, and the Association of Immunization Managers formed the Programmatic Registry Operations Workgroup (PROW). Standards of excellence were written to specify how registries can support vaccine management, provider quality assurance, service delivery, consumer information, vaccine-preventable disease surveillance, and vaccination coverage assessment.  In February 2003, the National Vaccine Advisory Committee endorsed these efforts. Additional information about these standards of excellence is available at http://www.immregistries.org/pdf/prowstandardscomp1.pdf.

The growing literature on immunization registries highlights the benefits and cost savings of registries to health care providers, managed care organizations, payers, schools, and health departments. However, little could be found that highlighted how registries could support the rest of a state or local immunization program.

In 2001, CDC sought to remedy this lack of information by identifying standards and best practices by which an immunization project can more closely integrate its registry functions into their program strategies, namely vaccine management, provider quality assurance, service delivery, consumer information, surveillance and assessment. The CDC enlisted the help of the American Immunization Registry Association and the Association of Immunization Managers to develop these standards. As a result, the Registry Standards of Excellence in Support of an Immunization Program was developed with the participation of immunization program managers and registry managers from across the country, and completed in October 2001.

The term Standards of Excellence was selected because these standards are ones to which all immunization programs and registries can strive, that is, they are more of a ceiling than a minimum set of requirements or floor. The Standards are organized by the core immunization program components established by CDC for the Section 317 grantees.
The Standards of Excellence document is a companion to a number of existing documents, specifically, the National Immunization Program's Immunization Program Operations Manual, the minimum registry functions approved by NVAC, and the registry certification process. Each contributes unique but complementary guidance to ensure more highly functional registries that meet both the external needs of immunization providers and the internal needs of an immunization program.